“Your drawings help patients and their parents understand this disease.”
After a morning seeing patients together in the HIV clinic, this was the lesson the pediatric resident remembered from our clinic together.
I do like to use drawings while I am explaining to a family how HIV attacks the body or counseling an adolescent on why it is so very, very important that they take their medicines every single day. The resident saw me draw the same picture over and over again (with slight modifications to make the child in the picture look more like the child in front of me.)
And my patients here seem to really like the drawings. They always want to take them home. This may be largely the novelty… Too often, the other clinicians do not take the time to explain these ideas to them. Plus, in a setting where much of the learning is done by rote didactics, lecturing and demanding memorization, learning with something visual — something that I keep changing as we talk — stands out. Of course, I hope that it improves their understanding too.
Tomorrow morning, I am training pharmacy technicians on how to counsel families and children about HIV medicines, so I have been giving extra thought to my usual drawings and words. They don’t need to make a drawing like I do, but they do need to be able to use words and concepts that families understand well enough that the families can grasp why we want them to take these medicines in the way we do.
Here is my spiel and what I would draw for you on the back of a lab request form….
This is you! Otieno! And this is how I want your body to look – healthy and strong and growing. I want you to be healthy and strong so that you can do anything that you want to do. I want you to be able to run and play. I want you to be able to go to school. I want you to become an adult and have a family if you choose. I want you to have a good job.
For all of us, we must be concerned about the germs that are around us. We sometimes call these germs “bacteria” or “viruses.” Germs are tiny little things that can come into our bodies and make us sick. It is germs that cause problems like diarrhea, pneumonia, malaria, and TB. We don’t like these germs that can make us sick!
Thankfully, our body has soldiers to protect us against these germs. These soldiers are very small, but there are many of them throughout the body. Our body has an army of soldiers to try to protect us against the germs that want to make us sick. This is called your immune system. These are the soldiers of your body. We will give the soldiers guns that they can use to kill the germs. We want your body to have many, many soldiers to protect it and to keep you healthy and growing. The name that we call these soldiers is CD4 cells.
Unfortunately, as you know, your body does have one virus living inside of it that cannot be killed by these soldiers. This is the HIV virus. I am going to draw it as a snake because I hate snakes. You do not have a real snake living inside of your body, but we will think about the HIV virus like a very bad snake that is inside the body.
This snake is so bad because it wants to kill the soldiers of the body. It tries to kill the soldiers, and then you have no army to protect you from the germs that can come in and make you sick. This is how the snake tries to defeat you. It is very, very sneaky in how it tries to kill the soldiers of the body. When it destroys the army of your body, then the germs can make your body weak and sick.
We do not have medicines to kill this snake. We do not have treatment to remove this snake from the body. I wish that we did, but there is no treatment anywhere in the world right now that can remove this snake from the body. If scientists find such a treatment, I will try to bring it to you right away.
What we do have is sleeping medicine for this snake! We have medicines that will keep this snake sleeping, so that it cannot kill the soldiers of the body and so that your body’s army can become strong again. This snake is so bad that one medicine cannot keep the snake sleeping. Even two medicines cannot keep the snake sleeping. But when we use three medicines, we can keep the snake sleeping.
If the snake is sleeping, then your body will remain healthy and strong. You will grow. You will be able to do all of the things that you want to do – go to school, become an adult, get married, have a family. We must keep the snake sleeping so that you can be strong and healthy.
These medicines that keep the snake sleeping, they only last for about 12 hours. But we want the snake to be sleeping for all of the day and for all of the night. So, we must take these medicines in the morning to keep the snake sleeping during the day. And, we must take the medicines again in the evening to keep the snake sleeping during the night. I know that it is difficult to take these medicines every day and to take them in the morning and then again in the night. I know that this is a challenge for many. But this is how we keep the snake sleeping. And we want to keep the snake sleeping so that you can be healthy and strong.
If you miss to take the medicines in the morning or in the evening, the snake can wake up. Whenever the snake is awake, it starts to kill the soldiers of the body. If the snake keeps waking up again and again, then sometimes it becomes stronger than the sleeping medicines. If the medicines can no longer make the snake sleep, then your body’s soldiers will be defeated again. We want to make sure that this does not happen. (We call this the virus becoming resistant to the medicines) This is why it is so important for you to take the medicines in the morning and in the night. We want the sleeping medicines to continue to work and to keep the snake sleeping.
I have high hopes for YOU. I want you to be healthy and strong, Otieno. I want you to be able to live positively. I think you will be able to meet this challenge of keeping the snake sleeping. I think you will GO FAR.